Past integrated care board and integrated care system engagement

Palliative and end of life care expert reference group

A lived experience expert reference group was set up to help us gather experiences and feedback from local people, either personally or as a carer, to help us improve the way palliative and end of life services are provided in Cornwall and the Isles of Scilly.

2025 community conversation engagement programme

We got out and about across our local communities to talk to local people as part of our community conversation engagement programme.

This included attending:

  • Local community events across Cornwall
  • Visiting Isles of Scilly (30 to 31 July 2025)
  • Local medical condition support groups
  • Health settings and events including GP surgeries, community health venues and local diabetes super clinics
  • Annual Conversation involving children and young people, hosted by Cornwall Council
  • Cornwall Pride events

Caring where it matters survey

People across Cornwall and the Isles of Scilly were invited to share their views on the future of local health and care services as part of Caring Where It Matters, a new NHS communications and engagement campaign. The survey closed on 15 March 2025.

Survey for patient participation group members

As part of the integrated care board’s ongoing work to listen to and understand the needs of local people, we invited PPG members to complete a short survey.

The survey asked about how the PPG currently operates, key PPG contact details and information to help us plan 3 PPG events, scheduled for late January and February 2026.

Age friendly communities survey

Local people were invited to respond to Cornwall Council’s survey, which asked everyone, including children, what they think it means to be an older person in Cornwall, including people’s experiences and concerns.

The data from the survey would be used to form part of Cornwall’s application to become an ‘age-friendly community’.

Parkinson’s carer survey

Carers of people living with Parkinson’s locally were invited to take part in a survey. The survey was produced jointly by NHS England, the Office for Health Improvement and Disparities, Parkinson’s UK, and University College London.

Proposed NHS dental contract changes

The Department for Health and Social Care opened a consultation on proposed changes to the NHS dental contract. The consultation was promoted on our website and feedback was requested before the consultation closed on 19 August 2025.

Help attract the future NHS workforce

NHS England launched an online conversation on how the NHS could better attract people to its more than 350 careers. This was a chance to feed in ideas and good practice. The Solving Together platform was promoted on our website.

Shaping the NHS 10 year plan and winter wellbeing events

We invited people to take part in our local NHS 10-year health plan engagement to help ensure that the local needs for Cornwall and Isles of Scilly were fed into the national plan, and to shape local delivery.

A series of online and in-person engagement events took place during January and February 2025.

In-person events, as part of our winter wellbeing events

Working with local health and wellbeing providers, we provided winter wellbeing advice at our events. People could enjoy free activities and try new things, get NHS advice and health checks and find out about local wellbeing support.

Events held

  • Online event: Wednesday 29 January from 2pm to 4pm
  • Guildhall, Saltash: Saturday 1 February, 10am to midday and 2pm to 4pm
  • Redruth Community Centre: Tuesday 4 February, 10am to midday and 1pm to 3pm
  • County Hall, Truro, Friday 7 February, 10am to midday and 2pm to 4pm
  • Online event: Tuesday 11 February from 6pm to 8pm
  • Old Town Inn, Old Town, St Marys, Isles of Scilly: Thursday 20 February, 10am to 4pm
  • Parkhouse Centre, Bude: Saturday 22 February from 11am to 3pm

Change NHS: Help shape the emerging priorities for the NHS 10 year plan

To help finalise the plan, we needed to get views on the emerging ideas from the engagement so far.

A follow-up survey invited people to feedback on the emerging priorities. The survey closed on Monday 14 April 2025.

Other ways to get involved

A local survey ran until 28 February 2025. People could also give their views via the national online platform.

Helping improve future services and the way we communicate with and engage local people

We ran 2 surveys.

Survey 1: Shaping our health and care plans in the future. We asked people to complete this survey to help us shape the way we do things in the future and sign up to give your experience and ideas to help us improve local services.

Survey 2: Have you seen our NHS communications? We wanted to understand if people had seen or heard our NHS communications.
Respondents were asked to complete our quick survey so we could understand their knowledge of local health services and if our promotional methods are working.

Feedback will be used to help us shape our health and care plans and our winter communication planning.

Winter wellbeing event interest

Building on our summer wellbeing festivals, the integrated care board was discussing with partners the delivery of local winter wellbeing events from December 2024 to March 2025. We were keen to find out if local people would value these events, and asked people to complete a short survey to give us their views.

Help shape health research

This was an exciting opportunity for individuals aged 60+ in Cornwall, Devon and Somerset to join a patient and public involvement and engagement group. The group would help guide the research at the National Institute for Health and Care Research Exeter Biomedical Research Centre.

Live well with diabetes event

This event was held on Thursday 17 October 2024 from 10am to midday.

Organised by Hearing Loss Cornwall and with Diabetes UK in attendance advice was available on:

  • food
  • medications
  • exercise
  • technology
  • symptoms

Healthier Together and a summer of wellbeing

A partnership collaboration with community hubs, town councils and local health and wellbeing services, delivered 8 summer wellbeing festivals to launch the start of our prevention ‘Healthier Together’ communications campaign. Over 2,000 people attended the festivals and over 300 received health checks as part of a drive to encourage local people to make small changes to look after their long term health. Watch the summer festival of wellbeing film.

The festivals had stalls and activities themed around:

  • getting checked: with blood pressure, oral cancer and health checks provided at events
  • advice on eating well and local food schemes and growers
  • taster sessions to move more from Healthy Cornwall and Active Cornwall
  • opportunities to try new things from craft and art to sport
  • being kind: promoting volunteering and mental health support

Feedback from organisers and people attending events at St Austell, Bude, Penzance, Wadebridge, Redruth, Camborne and Hayle has been really positive and requests have been made for more events to run over the winter to promote and support people over the colder months.

Winter wellbeing events

Building on our summer wellbeing festivals, the ICB is discussing with partners including Volunteer Cornwall and Cornwall Council the potential to work together to support a series of winter wellbeing events that could take place in community hubs using existing or additional events from December 2024 to March 2025. For more details sign up to our monthly Cornwall together bulletin.

Involving people living with diabetes to shape future services – case study

We worked with Diabetes UK and Three Harbours and Bosvena Primary Care Network to carry out series of engagement with 62 people living with diabetes and their family/carers to find out their experiences and ideas to shape the way we provide support and services.

In response, the team piloted a series of diabetes “super clinics” to make access to essential annual diabetes reviews simpler, easier, and quicker to do for just under 200 people in Cornwall and the Isles of Scilly so far.

The super clinics were arranged in collaboration with the Primary Care Networks, Kernow Health CIC, Cornwall Diabetic Eye Screening programme, Diabetes UK, Volunteer Cornwall, and Cornwall Council.

People with diabetes were invited to attend the specially arranged diabetes clinics as part of their annual diabetes reviews. Usually, these annual reviews require a person to attend separate individual appointments, but the clinics bring together 9 different essential health checks that are carried out within a 30-minute appointment, on a weekend. These clinics speed up the annual review process, saving professionals time and making it quicker and easier for patients who no longer need to attend multiple appointments.

Patients attending the diabetes super clinic receive checks on their blood sugar, blood pressure, heart rate, cholesterol, urine, weight, BMI, eyes, and feet. The entire process took a fraction of the time typically associated with traditional check-ups and all done on the same day.  People who attended also found their worthwhile and were keen to see this approach expanded.

For 2024/25, the team will be working with people of lived experience of diabetes to shape the future pathways through a new clinical reference group and people of lived experience group involved in providing feedback and co-designing our approach.

Community conversations shaping health and care services May to December 2023

Engagement and patient experience teams, commissioners and volunteers from the Integrated Care System were out speaking to local people, as part of a programme that we called our Community Conversations engagement programme.

We asked people about how we can make Cornwall and Isles of Scilly a healthier place to be born, to live and grow old. The feedback we gathered in many different formats from surveys to film clips of individual stories, has been used already to make changes to the way services are delivered for people with hearing loss or who are d/Deaf.

All the feedback will be used to inform the final version of Integrated Care System’s 10-year Integrated Care Strategy and the Integrated Care Board’s 5-Year Joint Forward Plan and 1-year Operational Delivery Plan which sets out how local organisations will work together to plan, deliver and improve local health and care services.

Tackling digital exclusion

With over 13% of adults in Cornwall and Isles of Scilly digitally excluded we were and are keen to talk to people face-to-face, so we attended:

  • 26 community events
  • 21 community groups
  • 3 community hospitals
  • 10 GP surgeries

We also flew over to the Scilly Isles in May 2023 and attended public locations and events there.

Feedback from our community conversations

The findings from all the engagement activity that also involved several online surveys, a commissioned piece of engagement with people from marginalised communities and linking up with Young People Cornwall, to hear from young people what they think would make Cornwall and Isles a healthier place for young people, we hope to publish around February 2024.

Engagement activities between July 2022 and January 2023

From its inception in July 2022, the integrated care board has endeavoured to focus on listening to the Cornwall and Isles of Scilly population through some new and some existing methods.

Outward facing public facing engagement has naturally concentrated on the following areas because of the huge demand on emergency and primary care services in the region:

  • people’s experience of accessing primary care services
  • people’s experience of urgent care services
  • people’s experience of pharmacy services

But in December, the integrated care board began to look at other areas of healthcare that the public have raised concerns about, as phase 1 of its integrated care strategy engagement. This engagement used Cornwall Council’s Let’s Talk Cornwall website for the first time to reach more people. The survey was advertised by the integrated care board and Cornwall Council.

A summary report detailing the engagement activities of the ICB’s engagement team was presented to the citizen’s engagement and equalities committee.

Cornwall and Isles of Scilly developmental differences plan events

Public events were held on:

  • Friday 25 November 2022 from 9.30am to 3pm in Bodmin
  • Monday 28 November 2022 from 9.30am to 3pm in Penzance
  • Tuesday 29 November 2022 from 9.30am to 3pm in Truro

There were spaces for 50 people at each event that were booked using Eventbrite. All the events were heavily subscribed. 2 events were fully booked, and the other event was just under fully booked.

Working in a structured way in small groups, parents and carers worked together with a multi-professional team of facilitators to look at what the changes could be made in the short, medium and longer term. They looked at what there already were for families and children and young people and what else is needed to achieve the aspiration of a truly child-centred service.

For the publicity information used to promote the events, please see the Cornwall and Isles of Scilly developmental differences plan information leaflet. The outcomes of the 3 events in November are currently being written up and will be published on this website soon

Suicide prevention strategy

The region’s suicide prevention strategy was informed by the views of local residents and people with lived experience of suicide bereavement and suicide attempts. Read the suicide prevention strategy.

‘Hear Our Voice’ report

Healthwatch Cornwall heard from 160 carers of people with dementia and memory loss about how services for people with memory loss and dementia could be improved.

The research report and recommendations can be accessed through Healthwatch’s website.

Patient and public voice (PPV) procurement partner engagement

NHS Cornwall and Isles of Scilly Integrated Care Board (NHSCIOSICB) commissions a range of health and care for the population of Cornwall and Isles of Scilly.

Commissioning is best described as a continual process of planning, agreeing, and monitoring services. It involves many different elements ranging from an assessment of the population’s health needs, to deciding and defining how the best services are delivered, to going out to tender for services, to negotiating contracts and quality monitoring.

Over November 2022-January 2023 we advertised several volunteer vacancies for patient and public (PPV) procurement partners.

Our PPV procurement partners are members of a specific project team who assess tender bid responses for a service in order to award an NHS contract to the successful bidder.

Details

The service which is currently being procured is the non-emergency transport service involving:

  • non-emergency patient transport
  • secure mental health transport
  • high dependency transport
  • car service

This opportunity has now closed and we will publish the outcome from this procurement once it is complete.

Citizen Advisory Panel

The Citizen Advisory Panel (CAP) provided an independent view and critical friendship on matters relating to health and care.

The CAP helped to ensure that the voice of the local population was heard and influenced developments and that opportunity was created for meaningful, targeted and proportionate carer and public engagement and given equal importance to the work that was done with health and care partners.

After discussion with CAP members at their meeting in September 2023, the decision to stand down CAP was confirmed by the citizen engagement and equality committee in October 2023. However, we continue to work with the remaining members on our engagement strategy delivery project, which will see their involvement in the development and setting up of our new engagement functions.

Page last reviewed: 14 May 2026

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